Resources
Talk by 'local man' David Calder, Retired Journalist, Podcaster and Prostate Cancer Survivor
We are delighted that ELPCSG member David Calder, who gave a fascinating talk to members via Zoom on Thursday 9th September 2021, has agreed that we can make his presentation available on the ELPCSG website. Please click here to watch it
Look Good Feel Better
Look Good Feel Better is a leading cancer support charity aimed at boosting the physical and emotional wellbeing of people living with cancer. Currently they provide online workshops covering skincare and make-up; grooming; hair loss, haircare and wig advice and nail care. For more information please click here
ELPCSG publications
We produce two fliers - a general information leaflet about the group and the Buddying service we offer (Buddy Flier) , and an A4 poster which publicises the work of the group (Buddy Poster) - the latter is particularly useful to display in GP surgeries and medical centres. These are downloadable by clicking below.
Prostate Cancer Research's "Infopool"
The Infopool is Prostate Cancer Research’s patient information and education platform. It has been developed by, with and for patients to address the unmet needs and challenges of the prostate cancer patient community as well as their carers and family members. The Infopool provides patient, carer or family member with some useful and interesting information as well as an opportunity to help shape the latest prostate cancer research and developments and to ensure your voice is heard and magnified. The Infopool can be accessed here
Professor Joe O'Sullivan's presentation
At our members' meeting in September 2019, our min speaker was Professor Joe O'Sullivan, Clinical Director of the Northern Ireland Cancer Centre. Joe's presentation was hugely popular and he spoke to a packed Maggie's audience - members have requested copies of Joe's slides and these can be downloaded here in PowerPoint format.
Prostate Scotland
Our colleagues at Prostate Scotland produce a very wide range of accessible information about prostate cancer, its diagnosis and treatment (as well as other diseases of the prostate). Please use the link below to browse and download information
Should you need further prostate cancer information or booklets please go to www.prostatescotland.org.uk or contact them here - though please note that they cannot answer individual medical enquiries.
Useful Links
There are many websites about cancer and prostate cancer, not all of them will be reliable and some may be inaccurate and alarmist. We have found the following websites to be objective and based on fact. Please click on the organisation name and this will lead you to their website...
Maggie's Centres - offers free practical, emotional and social support to people with cancer and their families and friends.
Prostate Cancer UK - funds research
Macmillan Cancer Support - provides physical, financial and emotional suoort to help those with cancer and their families and carers
Marie Curie - provides care and support for people living with any terminal illness, and their families
Western General Hospital, Edinburgh - large hospital in Edinburgh which includes the Edinburgh Cancer Care
St John's Hospital, Livingston - hospital which provides some cancer care for those living in West Lothian
Cancer Research UK - pioneer research to bring forward the day when 'all cancers are cured'
Tackle Prostate Cancer - campaigns for improved and earlier diagnosis of prostate cancer, and provides information and support
South East Scotland Cancer Network - SCAN works together regionally to improve cancer services
Scottish Cancer Prevention Network - aims to help cancer agencies to accelerate change and to increase capacity around cancer prevention
Scottish Medicines Consortium - The Scottish Medicines Consortium aims to ensure that people in Scotland have timely access to medicines that provide most benefit based on best available evidence
Sexual Advice Association - provides information about sexual problems (often experienced by men who have prostate cancer or have had treatment) including issues around erections and low sex drive
Institute of Cancer Research - The Institute of Cancer Research, based in London, is one of the most infuential cancer research organisations in the world
NHS Inform - Health Information website - NHS Inform's aim is to provide the people in Scotland with accurate and relevant information to help them make informed decisions about their own health and the health of the people they care for
Prostate Cancer Research Centre - works with some of the UK’s top scientists with a shared aim of reducing morbidity, increasing survival rates and improving the quality of life for men with prostate cancer
International Prostate Cancer Education & Support Network - Us TOO International aims to empower men diagnosed with prostate cancer, and their loved ones, with the educational resources and support services to fight prostate cancer
Nutrition Resource provides information about nutrition and links to local organisations
Massage for cancer patients - Iris Cancer Partnership aims to 'advance the health and relief of those in need by reason of ill-health, by providing and supporting other organisations in the provision of massage therapy specially adapted for those diagnosed with cancer'
Sleep&ProstateCancer- click this heading to download an interesting article from the Prostate Cancer Foundation of Australia about sleep disorders and Prostate Cancer
Cancer and society in the 21st Century - research focusing on how rapid developments in cancer research and care are changing what it’s like to be a cancer patient
Travel insurance
Many men with prostate cancer have concerns about getting travel insurance; information about this issue can be obtained from the following websites:
Travel insurance - Macmillan Cancer Support
Travel insurance - Cancer Research UK
Travel insurance - Money Supermarket