Patient Experiences… Smaller text Larger text

We are interested to hear of your story about your journey and side eefcts of ttreatment and any other information you think will benefit others e.g.

1) any side effects of treatment , the journey you have been on and the decision making

2) about the challenges, impact on family lives, carer’s lives, decisions made etc.

2) you may have a story about how well you live your life after prostate cancer treatment. If you can tell us something about this aspect of ” life after prostate cancer” ( eg. physical challenges, mountain climbing, work, new challenges etc).

3) you may have also anecdotes or information/experiences that might be useful to other members.

4) if any side effects such as Incontinence remember the ELPCSG Toilet Card may help.

All such information will be kept confidential to ELPCSG and only used for supporting men (refer to our privacy policy). If there is a need to share this with other parties this would not be done without your full permission. Send your stories etc to 


Stories/Side Effects  - Localised Prostate Cancer

We hope to have more information soon in this section  from members (in confidence ) covering side effects such as osterporosis (sic), TURP/CRT and bladder, palpitations, incontinence, erectile dysfunction etc. etc

Chris Garner  – A Prostate Cancer Journey - Chris talks about his natural lifestyle approach to the disease for a number of years and eventual treatment

See also the SCAN (South East Scotland Cancer Network) web site and its bank of stories.


Stories/Side Effects  - Advanced Prostate Cancer

Advanced prostate cancer is cancer that has spread from the prostate to other parts of the body, such as the bones. It is also called metastatic prostate cancer. Prostate cancer can spread to any part of the body, but most commonly to the bones. Advanced prostate cancer can cause symptoms, such as bone pain and problems passing urine. It is not possible to cure advanced prostate cancer,but treatments can often keep it under control for several years. Bad as a diagnosis of PCa following a biopsy is things can get a whole lot worse on one’s first meeting with a consultant when one discovers that one has advanced PCa for which there is no cure.However, all is not doom and gloom. PCa moves very slowly and many men live a full life for several years after diagnosis. What one can achieve depends on many factors. The PSA and Gleason at diagnosis, the aggressiveness of the cancer, one’ s age and one’s degree of personal fitness.We are interested in publishing experiences and treatments here from men suffering from advanced prostate cancer. If you have such a story/experience/information on side effects  please send it to us. For those interested in clinical trials in particular Stampede click HERE. Also some other good information on Cancer research web site on localised advanced prostate cancer and metastatic prostate cancer , click HERE.

Les Horne (Edinburgh)Advanced Prostate Cancer Journey – Les frankly details his extraordinary story and experiences.

(Sadly Les lost his fight January 22 , 2015 to prostate cancer but he wanted to share his story for the benefit of others.)

Eddie Newman (from Wales) – A short extract from his story which goes back to 2006.

(Sadly Eddie lost his fight (2012) to prostate cancer but he wanted to share his story for the benefit of others.)


Other Experiences:

Les Alexander – Travelling to the US after Brachytherapy treatment